I'm in a moaning mood tonight and like Sue I think it is a good idea that I start making a record of what is happening health wise so that I can look back on it when I need to. Pete has been to the hospital today to get the results of his blood test from last week and to check on how his new drugs are going. The drugs (immunosuppressants (not sure this is how you spell it)) are going OK and he has to stay on the same dosage for the next few weeks and as they are not effecting his Liver at the moment the blood tests are now every 2 weeks instead of every week. They want him to start lowering the dosage of steroids down but he has told them that with the way he is feeling at the moment that there isn't a chance of that happening and it will just have to wait. The blood test taken last Tuesday says that his blood level is about 74 (should be 160) and the iron level is 3 (10 is very low). We know that it is now a LOT lower than that as he has was really ill on Thursday and Friday which will have effected his blood count with out a doubt. He was booked in for an iron infusion tomorrow BUT the hospital phoned late this afternoon to tell us that they could not get the iron until Monday !!! So now we have to wait and Pete has to suffer until then. He is going to see the Doc tomorrow to get a sick note for the rest of this week and next as there is no way he should be going in to work like he is.
Sorry that this post is a little depressing and boring but as I said this is more for me than anyone else. I will try and make the next post a little more up beat!